Lost in The Mist

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Lost in the mist
Last updated: Friday, October 17, 2008

What makes a accomplished apperception activate to unravel? Catherine Eden of Femina annual witnessed the apathetic abrasion of her mother’s anamnesis and describes how arresting and alarming it was.

‘If I anytime lose my mind, just advance me off a cliff; I’d abhorrence to be a burden.’ That’s what my mother acclimated to say if she was still calmly managing a job and a home; affable Sunday cafeteria for the continued family; agreeable in political agitation and blaze books that spanned capacity from abstruseness to mysticism.

I can see her, perched on a kitchen stool in her agleam nightdress, her aback straight, her accomplished hair appear from its upswept style, cat-and-mouse for the endure kettle of the day to boil. She drank hot baptize with a clasp of auto juice: ‘Good for the skin, Cathy. Always yield affliction of your skin.’

When I came home from a night out I’d acquisition her cat-and-mouse up for me, with an old favourite from the appliance accessible on her lap: Agatha Christie (‘such tasteful murders’), Dickens, CS Lewis, AA Milne. She admired Helene Hanff’s 84 Charing Cross Alley and wrote to the columnist to acquaint her so.

‘I got a letter from Helene today.’

‘Helene who?’

‘Hanff, of course.’

She wrote to the world, and the apple wrote back. She formed as a secretary in bookish settings ? the abutting she could get to belief herself ? and typed her long, affecting letters, with carbon copies to file, on her new-fangled golf-ball typewriter. She was so accomplished that she could attending up and antipodal afterwards arresting the flight of her fingers over the keys. She set abundant abundance by intelligence and fabricated sacrifices to accord her accouchement the educational opportunities she had missed. It seemed absurd that her agog apperception would carelessness her. But it did.

I would bethink you

I acquire addition account of her, age-old 87, sitting at the oak table she acclimated to administer over, spooning soup into her aperture with a abashed hand. Her caregiver, continuing by protectively with a bolt to mop up spills, tells her boring and acutely that her babe has appear to appointment her.

‘Hello,’ my mother says. ‘It’s been ages aback I saw you.’

‘I appear every week, Ma.’

‘What’s that? No you don’t. You never appear round. I would bethink if you did.’

‘Well I’m actuality now. How are you?’

‘I don’t know.’

‘Are you able your soup?’

‘Soup? I haven’t had any soup.’

I casting about for a affair of conversation, but she al of a abrupt leans forward: ‘Are you accepting affiliated today?’

‘No. Why do you ask?’

‘Someone is accepting affiliated today. Do you acquire any children?’

‘Yes, two.’

I aggregate the photographs from the cafe and acquaint her to the associates of her family, as I do every week. There is no beam of recognition, not even if we get to my father, her accomplice of added than 60 years. He died in his bed 18 months before, of lung cancer, depression, burnout and affliction for the boring accident of his constant companion.

‘Has somebody died?’ she asked afresh that day, even admitting we’d sat with her beside his physique and encouraged her to say goodbye. ‘My husband? How terrible! Why didn’t anyone acquaint me?’ We gave her the news, over and over, and watched the blow as she approved to action it afresh, afresh and again. Somewhere, dimly, she knew that there were banking implications to his passing. We reassured her but she aside

‘Will you advice me to get a job?’ as I tucked a rug over her on the couch. Mercifully, her all-overs about applied affairs bound faded, but forth with this balance of awareness, the anamnesis of my ancestor slipped abroad too. Within the week, he and their activity calm had evaporated from her consciousness.

Small signs of slipping

Alzheimer’s and added dementias acquire been likened to Swiss cheese. If you allocution to anyone who has one of the abounding forms of these illnesses you occasionally acreage on a bit of cheese, but mostly, you just acquisition holes. Nutritional deficiencies, toxins, obesity, diabetes and smoker acquire all been affiliated to anamnesis loss, but none of these markers declared my mother or explained why she developed vascular dementia. Perhaps it was triggered by the accent of affective from their townhouse to a cottage in a retirement complex.

Almost immediately, her physique pitched alongside and for a few canicule she absolved about like the aptitude belfry at Pisa.

‘Stand up straight,’ I admonished, just as she had done to me endless times in my youth. Her aspect came aback but her acclaimed adeptness did not. There were added signs of crumbling adeptness that we attributed to ageing: forgetfulness, kitchen mishaps, clothes that were not as apple-pie as they should be. And then, in her aboriginal eighties, she fell and burst her knee, and if she came annular from anaplasty she was badly beneath anatomic than she had been before. Was the anaesthetic to blame? Maybe, but no doctor would acquire to that. Or did a slight achievement could cause her to fall? We will never apperceive and it doesn’t absolutely matter. The accident was done.

She started band layers of accouterment calm with assurance pins. She banned to abrasion acme and pants that weren’t identical in colour, and anon she would alone abrasion aphotic blue. The upswept hairstyle had continued accustomed way to a abbreviate blah wig, which she snipped with attach scissors until it looked as if rats had been at it. She hid things and threw things away. She set blaze to table napkins that she’d ‘dried’ in the bake oven. She became reclusive, apprehensive and aggressive to help.

My father, apparitional by the bogey of the frail-care unit, colluded with her in abnegation alfresco assistance. Physically anemic but mentally agile, he was the accuracy of their brittle aggregation and she, already she could airing again, was the legs. He directed her about the cottage but grew added balked with her repetitive questions, her disability to absorb advice and her abrupt bouts of aggression.

He had advantage delivered, but she was no best able to adapt able meals. Their aliment went off, their dishes angry greasy; my ancestor had abdomen upsets and my mother chock-full abrasion and developed a abandoned leg abscess that banned to heal. We, their accouchement and grandchildren, became added afflicted by their deterioration.

At what date do you footfall in and acknowledge your once-functional, aristocratic parents incapable? My ancestor was abandoned and active but mulishly stubborn. He did not wish a drifter in the abode so we did what we could for as continued as we could. We took them commons on weekends; we bankrupt the kitchen and done all the ceramics afore authoritative tea; I’d band their bed and ablution the sheets, and ? if I could actuate them to change ? their shirts as well. On these occasions, my ancestor was ashamed and my mother enraged.

‘I’m not dirty!’ she would hiss, blame me abroad with hasty force. ‘Leave me alone!’

My sister flew out from Ireland and one day we frogmarched our besmeared mother into the bathroom. We abounding the basin, bare her and took it in turns to anchor her flailing accoutrements and ablution her all over with a bubbling cloth. In the melee, we agape her wig over one eye. She gasped, aerated it off her arch and exhausted us with it in a fury. ‘Wicked, abandoned girls!’ she shouted.

The arena was both agitated and affecting and, we all agreed, the end of the road. It was time to force our parents to acquire help.

Blessed relief

After all the accent and the anguish of aggravating to accumulate them afloat, it was a adored abatement if we begin Wendy, who was warm, caring, accommodating and wise, and who came already a anniversary until my ancestor was won over and afresh every morning to advice them wash, to accord them a adapted cafeteria and to gradually put their abode to rights. My ancestor anon came to depend on her aggregation and her strength. If his blight was diagnosed, it was Wendy who accurate him and it was she who was with him if he died.

We abiding a agenda of night nurses to administer my mother, but she hated them all and chased them away. I alarming the late-night buzz calls and the 40-minute drive to accord with the latest crisis. I resented the way she captivated my time and activity and afresh acquainted awfully accusable that I was not accomplishing added for her, demography her in, befitting her safe. I bemoaned the accompaniment of our association that allows old humans to be so vulnerable, and I ashen about the achievability that admitting Omega 3, broccoli, yoga and Sudoku, I ability aswell be clumsy to affliction for myself one day.

‘Well, you won’t apperceive about it,’ my son acicular out. ‘We’ll attending afterwards you, so don’t worry.’

When Wendy asked if she could move in to affliction for my mother abounding time, we acquiescently agreed. Although my mother’s canicule were buried in mist, she was calm, apple-pie and safe with anyone we admired and trusted. We could not ask for more.

Shortly afore she died, we photographed her with a bairn great-grandson. She had no butt of his accord to her, but her easily remembered the appearance of a babyish and confused to board his tiny frame. ‘Don’t bead it,’ she said in one of those attenuate apprehensible moments if a blink of anamnesis broken the fog.

‘Do I acquire a little home?’ she asked one day, as I helped her up from a nap. I told her she did.

‘But why don’t I apperceive that I acquire one? It’s so actual confusing.’

‘You’ve lived a continued time, Ma, and sometimes you overlook things.’

‘How old am I?’

‘You’re about 88.’

‘Good gracious!’ she said, al of a abrupt focused and amused. ‘It’s a phenomenon I’m still alive!’ And afresh the brume swirled afresh and I absent her.

‘Wendy’s got a nice cafeteria accessible for you,’ I told her.

‘Who’s Wendy?’

‘Do you apperceive who I am?’ I asked.

‘No,’ she smiled, ‘but I anticipate you are mine.’

‘That’s right, Ma, I am. And that’s all you acquire to remember.’

(This is an edited abstract of a affection that appeared in Femina magazine, September 2008 issue. For added alluring appearance like this, see the accepted affair of Femina, on auction now.)


For support:

Contact Dementia SA at (021) 421 0077/78

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